Exhausted, hot and hurting, Ella Murray sighs as she hangs over the side of the bathtub May 11, 2017 in Alexandria, VA. Ella has a rare genetic disease called Epidermolysis Bullosa which causes her fragile skin to blister and scar. Three times a week she must soak off the old bandages and have her mother dress the wounds all over her body ­ a process that can take three to five hours. (photo by Katherine Frey/The Washington Post)